friday 26th may 2017 - ways to support us
Donate direct to the PWS Australia.
Sign up as a fundraiser (individual or team) and ask for donations to your fundraising page. Or hold a Go Orange for PWS event (High tea, Cocktail party, Sporting event) and ask participants to donate admission either via your fundraising page or direct to you.
Too easy! Buy Go Orange for PWS merchandise and be sure to wear/use/display it proudly to raise awareness for our cause. You can also buy and on-sell merchandise and donate the profits.
On Friday 26th May 2017, wear or do something ‘Orange’ and share it on social media. Spread the word and give everyone plenty of notice to join in, share, like, post and repost. Just make sure the day is a huge ORANGE-FEST and be sure to get pictures for the world to see!
Prader-Willi Syndrome (PWS) is a rare and very complex non-inherited genetic disorder in which several genes on the 15th chromosome are deleted or unexpressed. The common characteristics of PWS are small hands and feet, abnormal growth and body composition (small stature, very low lean body mass and early onset childhood obesity), hypotonia (weak muscles) at birth, insatiable hunger, extreme obesity and intellectual disability. In recent years, the syndrome has been genetically characterized as an abnormality of chromosome 15, and definitive diagnosis is now based on genetic testing.